Azure Jane Lunatic (Azz) 🌺 (![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
azurelunatic) wrote2023-07-12 02:57 pm
azurelunatic) wrote2023-07-12 02:57 pm
Entry tags:
What's Going On (Hip)
So now that the appointments are actually starting...
Somewhere in the 2-3 years range, I noticed my right hip being more squirrely than my left one. This coincided with getting my foot fidgeter. It also coincided with some of my numbers changing, because, I thought, of the foot fidgeter and also some other circumstances. (I do not care to discuss the circumstances in open entries, kthx. Nor the numbers.)
I got a hip x-ray, which showed a "lesion". I got an MRI, after about 4-5 months of fuckery in which the MRI people called me. Once. And didn't leave a message. Which I learned after complaining to my primary care that the MRI referral seemed to be taking for-fucking-ever.
I got the MRI at the end of May. I was told I'd get a referral. It took some doing to actually get the referral to go to someone who was accepting new patients.
I got a call from Fred Hutch (now including the artist formerly known as the Seattle Cancer Care Alliance) because there is some (currently undiagnosed) shit in my lower right abdomen. Specifically "a mass" that's slightly smaller than a small baseball and slightly larger than a large tennis ball. That was the first week of June. It was the "o hai how do you feel about having been referred to us, ok great you will get information and contacted by our schedulers Real Soon Now."
The schedulers failed to call, and failed to call, and failed to call. I tried leaving messages. This did not result in calls back. I sent a message to the person who had wrangled the referral going to the right place. No response.
My out-laws visited, which was fun.
I sent a message to my primary care, and brought it up in person when I saw her a few days later.
Within half an hour of walking out of the primary care appointment, I got a call from the new medical assistant saying that she'd got me an appointment for four days hence.
That was Monday. Monday morning, before I was awake, my phone got a call from Fred Hutch scheduling. I had an appointment before my appointment, to get some imaging in. I woke up somewhat later and saw first the text about the appointment.
After rescheduling it, we went in and had a halcyon afternoon of waiting around and filling out forms. I now have the Tumblr Color Theory Children's Hospital notebook to use as a paper journal.
My biopsy is tomorrow. I will be conscious but in no particular state to be concerned about anything. I'll be taking the bus up to Seattle, and once Belovedest has finished their Work Stuff and gotten out early, they'll pick me up.
Somewhere in the 2-3 years range, I noticed my right hip being more squirrely than my left one. This coincided with getting my foot fidgeter. It also coincided with some of my numbers changing, because, I thought, of the foot fidgeter and also some other circumstances. (I do not care to discuss the circumstances in open entries, kthx. Nor the numbers.)
I got a hip x-ray, which showed a "lesion". I got an MRI, after about 4-5 months of fuckery in which the MRI people called me. Once. And didn't leave a message. Which I learned after complaining to my primary care that the MRI referral seemed to be taking for-fucking-ever.
I got the MRI at the end of May. I was told I'd get a referral. It took some doing to actually get the referral to go to someone who was accepting new patients.
I got a call from Fred Hutch (now including the artist formerly known as the Seattle Cancer Care Alliance) because there is some (currently undiagnosed) shit in my lower right abdomen. Specifically "a mass" that's slightly smaller than a small baseball and slightly larger than a large tennis ball. That was the first week of June. It was the "o hai how do you feel about having been referred to us, ok great you will get information and contacted by our schedulers Real Soon Now."
The schedulers failed to call, and failed to call, and failed to call. I tried leaving messages. This did not result in calls back. I sent a message to the person who had wrangled the referral going to the right place. No response.
My out-laws visited, which was fun.
I sent a message to my primary care, and brought it up in person when I saw her a few days later.
Within half an hour of walking out of the primary care appointment, I got a call from the new medical assistant saying that she'd got me an appointment for four days hence.
That was Monday. Monday morning, before I was awake, my phone got a call from Fred Hutch scheduling. I had an appointment before my appointment, to get some imaging in. I woke up somewhat later and saw first the text about the appointment.
After rescheduling it, we went in and had a halcyon afternoon of waiting around and filling out forms. I now have the Tumblr Color Theory Children's Hospital notebook to use as a paper journal.
My biopsy is tomorrow. I will be conscious but in no particular state to be concerned about anything. I'll be taking the bus up to Seattle, and once Belovedest has finished their Work Stuff and gotten out early, they'll pick me up.
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What the FUCK is up with medical scheduling these days. Just. Wow.
//offers all the hugs
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Sending all the hugs.
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(That all sounds a mess and a muddle and not what one needs at all.)
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What a giant cluster.
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Wishing you the very best of luck, and far far better medicobureaucratic treatment than you've had thus far.
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Which reminds me, I need to chase down 1 referral and 1 follow-up-that-didn't. This is supposed to be their jobs, not ours!
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I arrived an hour early for today's shenanigans because bus schedules, but also because this is a big complex with, as I have just learned, shitty signage.
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Not that I'll be in this building again that I know of, it's just that the doctor who could do the CT guided biopsy is here today. (But not all days. Unknown whether that's in a different facility or just some well earned days off.)
(Partner has storytime this morning, at a time incompatible with accompanying me for when I need to get checked in. I won't be able to drive afterwards. The park and ride garage has a parking limit of 24 hours, and I wouldn't be comfortable leaving it there for 23. The main park & ride is inconvenient to home. (Of course.) So I took a few buses, cut through a building with an elevator to avoid a hill, and am waiting for my check-in time. I'll be joined by Belovedest after they get here in a car.)
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