Yeetings and Defiance

[azurelunatic]

My aunts have offered to come up to help during treatment. We are figuring out what that means and other details.

New test result dropped in MyChart, and while nobody has discussed the meaning of this with me yet, it seems perfectly clear and obvious that some of the less assertive options for treatment have dropped off the table.

* I'm going to want to get my power chair ready for longer trips out
* That means replacing the batteries
* It also means figuring out how to get it in/on a car in a sensible fashion


* It's 230-270 lbs, depending on battery; I will no longer be available for team lifting for obvious reasons
* The accessibility place around the corner says that Toasters are too small for external trailers.
* It would need to at least be a Class 2 tow hitch, and possibly higher given the unloaded weight of one of those trailers and whatever we're using to secure the thing
* We're looking at stowing the chair in the back of the car, then.
* The chair, fully assembled, does not fit upright into the back of a Toaster. The seat has to come off.
* We might as well use a ramp at this point. Probably the suitcase variety, since we've got 2 cars and, well, the house has steps at all the doorways.

I'm starting to get sticker shock. Sigh.

Comments

[vass]

This really sucks. Let me know if you need signal-boosting for a crowdfunder.

[azurelunatic]

Thank you. I've been laying out the stuff we'll probably be responsible for getting in a document and vaguely sorting it by price.

[sine_nomine]

Well, this blows.

And (speaking as someone with a stack of medical issues), to me, the thing that is the worst of all this is how my energy one has to expend on Thing Management - right when one doesn't have the energy to expend.

So glad it seems like you have good support. Keeping all crossed, and sending energy to all involved.

[azurelunatic]

Yeah, it's going to take a pretty good hit against my energy levels. My biopsy appointment took out 2 days afterwards.

[princessofgeeks]

Wishing you all the best.

[azurelunatic]

Thank you.

[silveradept]

It'll take some adjusting to start with, but hopefully there's a method to get it all stowed and unstowed that will be quick and relatively easy to perform.

[sraun]

Ouch!

One of my son-in-laws had a pelvic bone tumor that had to get removed - maybe twice? Whatever - he's had at least one hip replacement, and is considered disabled. His family got a grant from either the state or the county to add ramps and a stair lift to their house. It might be worth investigating to see if there's a similar program where you live?

[azurelunatic]

It would be very good to have ramps and a stair lift.

[pauamma]

Sympathy and support, for what they're worth at that distance.

[steorra]

I hope everything goes as well as it can!

[synecdochic]

Ughhhhhhhh. Let me know if there's anything I can do to help, and ditto on the "I will boost the crowdfund"

[azurelunatic]

I am putting together a document of things that I can think of now while I have most of my brain. It's currently in progress, of course. It's on google docs at the moment.