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Nov. 12th, 2023 01:09 am
azurelunatic: Vivid pink Alaskan wild rose. (Default)
That thing where your cells "need oxygen" and "can't function without it" sounds like a story made up by Big Hemoglobin to sell more beans for the iron content.

...

So I'm back from the emergency room, where I went after consultation with the chemo after hours triage and a couple questionable numbers on the pulse oximeter. Which I calibrated against the ER machine. I did also get the ER machine to throw some bad numbers, but in a way that suggested that it may have been an error caused by not enough red blood cells for the light to interact with correctly. Which is delightful and hilarious. We were there for not quite 4 hours. I gave someone in the waiting room my orange soda and marzipan bar, since it looked like she needed it more than I did.

I'm not yet at the threshold where the ER wanted to give me a transfusion. We'll see how it goes.
azurelunatic: Vivid pink Alaskan wild rose. (Default)
So I said something offhand over at [personal profile] kaberett 's about the amazing fabulous boots available at https://www.manitobah.com/ -- which kab has tested and found that they are in fact fit for purpose.

Lo and behold, the other afternoon while I was waiting as a ride for Alex's appointment, [personal profile] momijizukamori emailed me.

With a gift card.

Which was the result of a whip-around that included Quite A Few People, omg.


Chemotherapy with Taxol includes highly recommended cryotherapy. So every three weeks, give or take, for the next Few Months, I stick my feet in fluffy socks and then in the Cold Socks. For three+ hours. With cold gloves. And a cold cap.

And it's so very sweet that so many people went "...yes, Azz should get Warm Feet."


I have ordered some boots.

Ow

Nov. 5th, 2023 04:54 am
azurelunatic: Vivid pink Alaskan wild rose. (Default)
"fatigue" is understating the sheer muscle and joint soreness here.

It was much worse before the meds kicked in. So that helped, but I'm still awake.

The Chop

Oct. 29th, 2023 02:19 pm
azurelunatic: Skeleton: close-up of the right hip area, medical diagram. (hip)
After two weeks of minimal hair loss, I started getting significant fallout. It accelerated rapidly enough that in one afternoon nap I went from mostly fine to needing to cut out a significant tangle with hair that had already fallen out knotted in with the rest. At which point I sighed mightily, grabbed some hair elastics, and did The Chop.

Which is cute as hell, incidentally, at least temporarily. I'm starting to be able to see a little too much of the surface of my head, though.

I regret to inform everyone that this sort of Hair Shenanigan means that sharp-ended hair will continue to fall into your collar while you are out minding your own business in Home Depot and it will suck until you track down the specific hairs and remove them, at which point they will promptly be replaced with another three.

The cold cap is very effective, though, despite all this! The Control Site (as I have termed the other major location, which did not get cryotherapy) has lost what I think is like 75% of its hair.
azurelunatic: Vivid pink Alaskan wild rose. (Default)
Let us merely say that Mistakes Were Made, and I wouldn't wish my Thursday evening through today on anyone I have decent human regard for.

I had two cups of coffee at the hotel, see. Then I had a nutritional drink (with lactose) without any milk pills just as I was on the road to recovery on Saturday night.

***

I did attend my physical therapy appointment on Friday, even though I was comprehensively flattened. I'd burned through my usual reserves and no longer really had upright in me. I got a set of horizontal rehab exercises that were about the correct speed.

I don't know why, but it seems like intestinally centered woe puts me to sleep (not good or solid sleep, but sleep) so I didn't get that much gaming done while I was down.

Belovedest and I started Gideon the Ninth on some of the Seattle trips, and they are coming to understand exactly what kind of petty bitch Harrowhark is.

I did get my Halloween chemo bumped to Wednesday, but I can arrive in costume all the same. The parasol arrived today. Very good snap to it.

A cool thing: someone in my wider circles came out as non-binary recently, and it's been fun getting used to the idea and practicing their new pronouns. I've added "with limited legacy support for __" to my book of explanations, as a computer metaphor for certain types of Not Wanting To Have That Fight Now or Here. Yes of COURSE this used to work on IE6, but it might not tomorrow.

Yellface remains soft and warm.

I got Belovedest an inflatable lawn dragon. They're about as noisy as a computer, due to the fan.

Timeline

Oct. 12th, 2023 12:19 pm
azurelunatic: Vivid pink Alaskan wild rose. (Default)
In accordance with the prophecy, the now 24+ hours of no drain access at home has coincided with my chemo recovery week.

Monday, not quite 8 am:
☎️🛎️ "BTW, plumbing starts tomorrow!" 🙃

Monday, late evening:
I book a hotel for Wednesday and Thursday nights, on the assumption that the sewer outage probably won't start until 3pm

Tuesday, not quite 8:
Small orange digger in our front yard

Tuesday, noonish:
We depart for my chemo

Tuesday, fiveish:
The 72 hour clock for my infused side effects meds begins

Tuesday, 10pm:
We depart the infusion center. I have epic dry eye and am fighting sleep badly enough to not track my audiobook super well.

Wednesday, 7:30 am:
☎️🛎️ "Sewer will be out at 10a, if that's OK! Then the inspector comes tomorrow morning!"
My beloved partner, half awake and stunned: "Fine..."
Me: "FUCK."

[personal profile] alexseanchai and I scramble to pack.

8:30:
We scram out the door with Belovedest, because the library has bathrooms.

Midmorning, I'm feeling up to driving. I call the hotel.

By 11:30, we're checking in.

(Steph, meanwhile, prepares to fuck off to River Thorn Cottage after their work call.)

Okay. 10 AM Wednesday means we should have sewer back by 10 AM Thursday, right?

Hôtelier: Just let us know ASAP if you won't need that second night!

4:30 or so: Belovedest gets a voicemail from the plumbers. The inspector will require an additional $500 of work/parts for a thing. Belovedest is unreachable due to a program.

5-ish: 24 elapsed of 72 hours of the side effects meds clock. I have been taking the breakthrough meds since midnight, but the few symptoms are not bad.

6pm: I return to the library to retrieve Belovedest.

6:15pm: nobody picks up at the plumbers'. No voicemail either.

Thursday morning, 10am.
No word from the plumbers.

Noon (standard checkout time): no word from plumbers.

And here we are.
azurelunatic: Vivid pink Alaskan wild rose. (Default)
Finally got around to doing the hardware store order, and Sunday night Belovedest did the necessary sawing and pounding to get the knobs in place. Now the risk of one of the Ladies breaking containment is much reduced. Corner room door and basement stair door. Now it seems like the only original knobs are the main bedroom and perhaps the least-used outside door.

A few weeks ago I got my hands on one of those laundry sorters that I've always wanted. That resulted in three upheavals of the bedroom before I was satisfied, but it's a good change overall.

More recently, a set of the tough vinyl medical recliners that a person would be settled into if getting a large whack of fluids. Those only barely fit into my Toaster. I am receptive to Belovedest's suggestion that the downstairs one go into Sewzb0t Parlor, but that means tidying (which I need to do anyway).

My Toaster had been growling a little, only audible at low speeds. Turned out to be the AC compressor. A portion of the audience may be thinking "oh, I suppose you could do without AC in the car?" to which:
Have you met me? I start melting above 75F, which the PNW exceeds in the summers these days
and more saliently, since I was thinking about that too:
The belt for the AC compressor serves the alternator and water pump, and there is no bypass.

So Belovedest's credit card is steaming gently, and my Toaster didn't die terribly on the road.

It also needs some alignment and tire stuff, and I'm vaguely wondering whether I could just not drive for a little while.

Yellface continues to be The Softest.

I'm awake because I had therapy homework-ish, and it turns out that going over The Greatest Hits is emotionally stressful and not hugely compatible with sleep. First session was two weeks ago. I'm starting because basically the pandemic erased my ability to even, but also I hadn't really got my ducks in a row to sign up after the move into the PNW (2017). The discerning will of course note that this is 2021.

I finished the first quilt for Ev and have started piecing together the larger rainbow quilt. I de-linted the bobbin area, which was not as scary as I was expecting. Sunday I sewed a little pocket/bag/purse for my phone when I'm not wearing a thing with an appropriate pocket. It seems silly to wear a purse in the house, but it's great to have my phone on me when I wander places.

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azurelunatic: Vivid pink Alaskan wild rose. (Default)
Azure Jane Lunatic (Azz) 🌺

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